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BBS Research Survey
The Brittle Bone Society would love to hear from you. We want to know what you (our members and supporters) want from research. Please take some time to fill out this survey and get your voice heard!
8
Questions
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1
What is your gender?
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Male
Female
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2
What is your age?
*
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17 or younger
19-25
26-30
31-40
41-50
51-65
66-75
76 or older
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3
Where do you live?
*
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Please select one from the drop-down menu
Scotland
Wales
South East England
South West England
Midlands of England
North of England
Northern Ireland
Republic of Ireland
Channel Islands
Outside of the UK and ROI
Prefer not to say
Scotland
Wales
South East England
South West England
Midlands of England
North of England
Northern Ireland
Republic of Ireland
Channel Islands
Outside of the UK and ROI
Prefer not to say
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4
What areas do you want new BBS research to focus on?
*
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SCROLL DOWN TO SEE ALL 25 OPTIONS
Muscles
Skin (Dermatology)
Soft Tissues (Joints)
Hearing (Otology)
Lungs (Pulmonary)
Heart (Cardiology)
Digestive System (Gastroenterology)
Musculoskeletal System (Orthopaedics)
Gynaecology (Women's health)
Scoliosis
Basilar Invagination (BI)
Quality of Life
Fractures
Hypermobility
Fatigue
Diet
Sleep
Genetics
Allergies
Pain Management
Drug Consequences
Menopause
Collagen
Cartilage
Surgical Techniques
Dental
Other
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5
There are several early-onset genetic conditions such as Ehlers Danlos Syndromes, Hypophosphatasia (HPP), and Hypophosphatemia (XLH) that have some similarities to OI. In some forms of research, understanding these similar conditions may also benefit our understanding of OI. Should BBS enter into these types of projects?
*
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YES
NO
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6
What would
you
be willing to do?
*
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Please tick all which apply
Blood Sample
Bone Sample
Questionnaire
Medical Assessment
Interview (face to face / telephone)
DXA Scan
Urine Sample
X-Ray
Drug Trial (new drug)
Drug Trial (existing drug)
MRI Scan
CT Scan
I would not participate
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7
Are you a parent or guardian of someone under the age of 18?
YES
NO
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8
What would you consent to for your child?
*
This field is required.
Please tick all which apply
Blood Sample
Bone Sample
Questionnaire
Medical Assessment
Interview (face to face / telephone)
DXA Scan
Urine Sample
X-Ray
Drug Trial (New Drug)
Drug Trial (existing drug)
MRI Scan
CT Scan
I would not participate
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